Kids With Special Needs are NOT Given to Special People

Kids With Special Needs are NOT Given to Special People

I have had the pleasure of being a momma to a child with special needs for seven and a half years, my dear Connor. In these amazing seven and a half years, I have done everything possible to give my child who has multiple complex medical needs the best life imaginable. I have fought doctors on what I knew was best for him, marched the front steps at the State Capital rallying for his rights, and even traveled around the world seeking treatment to give him a better quality of life. To say I’m a “momma bear” is an complete understatement.

In all these years I have heard from family, friends, and strangers about what a great job I am doing raising my Connor man. I look down, shift my feet around, and quietly say thank you. Then the dreaded words are said. “God only gives special kids to special people.” I kindly smile on the outside, but on the inside I scream. I HATE that saying. I KNOW that these sweet people only have the most genuine thoughts behind this, but they need to know the truth-God can give anyone, YES ANYONE, a child with special needs.

I am not special. I am not more deserving of a little miracle child more than the next momma. I am not that parent that goes to all the class parties with homemade cupcakes, makes the latest Pinterest project on organizing my laundry room, or even the parent who remembers to sign the test folder every Tuesday evening. Nope, that is not me. I am ordinary and boring. I am late to doctors appointments, I yell at drivers who don’t use their blinkers, and I cringe when I see other moms at Target with their buggies full of organic foods and their well-behaved kids sweetly following behind. Agh! But I do know one thing, I am a parent. I, like millions of other women, was so graciously given a child from God. My child just so happened to be born with special needs.

The feelings you encounter when finding out the news your perfect child isn’t so perfect is astounding. One can wallow in self pity, hate God for “doing” this to their child, and just accept that life for that precious child will be less than good. OR one can seek the good in a not so pleasant situation, find a greater faith in God, and never accept anything less than perfect for their little miracle. It is all in a matter of thinking. Having a child with any special need at all takes a strong person, and if you aren’t strong at first, you must start lifting the emotional weights that life will be throwing at you. How you take on the responsibilities of this new life will ultimately determine what type of parent you will be.

We’ve all heard that saying, “God will never give you more than you can handle.” I call that BS. My God is a loving God, but a challenging one. He wants to see me thrive and grow into the person that I was meant to be. Challenges along the way are all a part of the journey He has created for me, how I deal with them is up to me. God WILL give me more than I can handle, BUT He guides me and gives me the grace to encounter them.special2

In the past month I have read 6 news articles on parents of children with special needs who have done horrendous, mind blowing things to them. One mother poured perfume down her child’s feeding tube, another parent killed his oh so special child because he wouldn’t stop crying, and on and on. Now please tell me again, God only gives special kids to special parents? Ummmm…no thank you. It’s a sweet thought, but it’s just not true. I would hate to even think for one second that I could be put in the same category as any of these parents. God gives us gifts in the form of our beautiful children, special or not. He expects us to take care of them, love them, and protect them.

I consider it a blessing to have my beautiful Connor. I’m thankful every single day for being able to raise such a precious miracle, BUT not every parent is like me. When you are given a child with needs that are far greater than you can imagine, you must rise to the challenge and become the parent that the child needs and whose life depends on it. It will be a tough, long road full of pot holes and dangerous curves trying to throw you off course.

The next time you see a parent with a child with special needs doing a wicked awesome job tell them exactly that. A simple, “Hey little momma, you are doing a crazy amazing job raising that precious child of yours!” or even “Wow!! I could only hope there are more parents like you out there!” or how about “You and your child are a match made in Heaven!” For most of us parents in the special needs world KNOW that our child is a blessing, however we could most definitely use a kind word telling us that perhaps we are a blessing also.

Katie
Katie, a self proclaimed "momma bear", enjoys living her busy, country life with her husband of 10 years and 3 sons just outside of Baton Rouge in Tangipahoa Parish. Katie attended Southeastern Louisiana University where she obtained a degree in Elementary and Special Education. Little did she know how her love of children with special needs would grow shortly after she graduated college. Her middle son, Connor, was born with a rare brain disorder called Schizencephaly-he is wheelchair bound, nonverbal, blind, battles retractable epilepsy, and is fed through a feeding tube. Katie and Connor endure the many trials they are put through with a smile and joy in their heart. Along with being an active member in her church and working for an online public school, Katie regularly advocates for those who experience developmental disabilities at the Louisiana State Capitol. She is the Region 9 leader for Louisiana Citizens for Action Now (LaCAN) and is a member at large for the Governor’s Advisory Council on Disability Affairs. When life's challenges seems too much to bear, Katie remembers this quote to keep forging ahead and being the voice for those who have none, “God often uses our deepest pain as the launching pad of our greatest calling.” -unknown

37 COMMENTS

  1. I’m Lisa from Quirks and Chaos on Facebook.

    I have two children with special needs and I get so tired of all the cliches I hear. I feel exactly the same way you do. God gives special children across the board and some of us step up to the challenge. Some do not. God does challenge us and it makes some of us trust Him more and rely on Him more. Great post. I wrote this one and my #11 was similar to some of your thoughts. http://quirks-and-chaos.blogspot.com/2014/08/my-15-truths-of-parenting-special-kids.html

  2. Hello, its good to know I’m not the only one that thinks this way. I have a special needs child also. He is my blessing, but he is quite the work. Many people have also said these things to me as well. I never would feel it true in my heart. What I feel true in my heart is I am blessed. I’m not perfect, but at the same time I question why pick me God? I believe these children are here to teach us something. I just have to find out what that might be.

  3. My son 23 has been a victim of Chronic SCHIZENCEPHALY. I am excited to share this testimony as i have been sad and confused for the past 23 months of my son been a victim of SCHIZENCEPHALY. Anti-psychotic medicine they induce psychosis, never helped rather worsened the situation, Homeopathy medication is good but has a lot of limitation too. I looked for solution everywhere all to no avail until I contacted a Herbal Doctor whose medicine works perfectly for him, my son situation has greatly improved which is what I have always wanted. If you have related problem, don’t lose hope, contact him ([email protected])

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